Monday, December 22, 2008
Rhetta is about to lose a top front tooth. She is wiggling it relentlessly with her tongue. All morning she's come to me and asked me to pull on it. It is almost ready but is being stubborn, just like her! I pulled until it made a cracking noise and she said it hurt. Then I smelled blood and got a little oogy. She was acting all goofy, though, so I took out the camera and we shot this video:
Wednesday, December 17, 2008
Sunday, December 7, 2008
Wednesday, November 26, 2008
She has imaginary friends and sometimes goes by different names. When she is upset she'll jump up, say "Buzz will be right back!" and run off fussing to a remote part of the house. She'll take a few minutes to calm down, then come back, "Buzz is back!" and she'll seem like she got it out of her system.
Sometimes she'll call me Corey and I'll respond and call her Daughter. Her reaction is a very terse no. She'll repeat herself then as if to emphasize the first name theme, as in, get a clue and call me Rhetta because I am calling you Corey and that's just that.
It's a fun age, 5, almost 6 now. She has decided on some very concrete rolls for the people in her life and is not accepting that we can have more than the role she has assigned to us. I do momma things and her teacher does teacher things and never the twain shall meet. I am sneaky though. I am disquising teacher things in and amongst my momma things and she is learning despite herself. Daddy does daddy things and she seems fine with those. Then again she is taking on some of those momma and daddy roles herself further confusing her own role as big sister.
We're working on it. Just like everything else. Still, I miss being called Momma
Friday, November 21, 2008
C & P'd directly from Bohemia-Anna where I was tagged at my request. Thanks Anna!
Here is the rule for the award:Pass it on to five other bloggers, and tell them to open the nearest book to page 46. Write out the fifth sentence on that page, and also the next two to five sentences...The CLOSEST BOOK, NOT YOUR FAVORITE, OR MOST INTELLECTUAL!!
I am staring at hundreds of books in front of me so I am going to close my eyes and pick one at random...
"...hypothetical injections i am
going to have dinner off a
man eating tiger if a vacuum gets
me i will try and send you word
before the worse comes to
the worst some people i told him inhabit
a vacuum all their lives and
never know it then he said it don t
hurt them any no i said i dont but it
hurts people who have to associate
with them and with these words
we parted each feeling
superior to the other and is that
feeling after all one of the great
desiderata of social intercourse
~ An excerpt from the merry flea within the lives and times of archy & mehitabel by Don Marquis, as written.
It takes a bit of stretching the mind, I think, to truly enjoy this kind of humor but I recommend it nonetheless.
Okay, I have no one really to tag so I guess it stops here for now unless those of you who read this want to do it twice. Let me know!
Saturday, November 15, 2008
Friday, November 14, 2008
Tuesday, November 11, 2008
Sunday, November 9, 2008
Tuesday, November 4, 2008
Running to get to the candy LOL!
Trick or treating on Main Street Delta.
Helping carve a pumpkin (always ready to help)
Growling at the camera AND touching the pumpkin seeds (a sensory hurdle cleared - woo!)
Monday, November 3, 2008
So go vote if you have not already. I'm not sure how I will survive without constant election coverage tomorrow. It'll be the one day this last 8 years I wish I had TV reception.
GO OBAMA '08!
Wednesday, October 29, 2008
Thursday, October 23, 2008
Monday, October 20, 2008
Saturday, October 18, 2008
Wednesday, October 15, 2008
Rhetta did an awesome job on her own again this year. I adore the pumpkin she picked out and she did so well carving it herself. It was a one-on-one project with Daddy. They played some jack-o-lantern games online. They practiced drawing different face ideas on paper. Then they carved the pumpkin. (I did the one with the spider web.)
Sunday, October 5, 2008
Rhetta reads all kinds of books. She enjoys all the Caldecot Award ones from the library and the classics that survived my childhood literally and figuratively. She's even starting to read some science-type stuff.
Willon asks us to read to him all the time. I think it's fantastic and I am so proud my kids love books. The ones he wants however are always Cars (Li' Tween, Yah-yee, Doc and May-moo), Thomas (Boo train), Elmo (Mahmo) and, hmm, nope, that's all. Just those three. He has them memorized - like 10 books.
One book remains a favorite with both my kids, though. I Like it When... by Mary Murphy. I have had to repair that book so many times it is indestructable now. They love it and it's our No. 1 bedtime book. Rob and I happen to love it, too.
Friday, October 3, 2008
~ Johanne Harris, Five Quarters of an Orange
Thursday, October 2, 2008
Monday, September 29, 2008
It is fall and the leaves are changing. Yesterday was Color Sunday. I didn't shoot a single tree. I simply wasn't in the mood. I got a couple shots of the canyon.
Looking northwest to the Grand Mesa in the distance.
Looking southeast toward the East Portal.
Here are some other pictures I didn't take but that will give you a much better idea of how incredible our backyard really is. :)
Saturday, September 27, 2008
Thursday, September 25, 2008
J. J. Fad Supersonic
Godfathers Birth, School, Work, Death
Giant Steps Another Lover
Climie Fisher Love Changes (Everything)
L'Trimm Cars with the Boom
M/A/R/R/S Pump up the Volume
Midnight Oil Beds are Burning
Danny Wilson Mary's Prayer
Scarlett & Black You Don't Know
Boys Club I Remember Holding You
Church Under the Milky Way
When in Rome The Promise
Bobby McFerrin Don't Worry Be Happy
Ziggy Marley and the Melody Makers Tomorrow People
Bardeux When We Kiss
Rob Base & D.J. E-Z Rock It Takes Two
One Hit Wonder Central
Wednesday, September 24, 2008
Tuesday, September 23, 2008
Sunday, September 21, 2008
Sunday, September 14, 2008
Starting in 1995 at age 22, after the birth of her second child, she began having symptoms like mini-strokes, blood clotting, blurry vision and headaches. She went to doctor after doctor, had test after test, got diagnosis after diagnosis, and tried treatment after treatment.
Her first official diagnosis was Protein S Deficiency which I'm not sure she still doesn't have. It is hereditary and is what causes the blood clotting.
When pharmaceuticals didn't work, or frankly made things worse with their side effects, she turned to homeopathy. Sometimes she felt better, other times not so much, but anything was better than the others' side effects.
She clung to prayer and decided she would just live with whatever it was because really, all the bills and hassle were affecting her quality of life more than her symptoms.
Still, there was no relief and nothing seemed to really work. Her symptoms worsened and the list got longer. She lost weight, couldn't sleep, she was prone to seizures and sleep apnea.
12 years went by. 12 years! The symptoms got so bad she could no longer function from day to day. The doctors were baffled. The specialists were baffled. She was baffled. We were all baffled. Then someone, I don't know who, got the bright idea to start over, so to speak. One of the first tests they ever did was an MRI on her head to check for any blood clots that may have passed into her brain. What they missed was something they didn't even know to look for.
The new MRI showed what was not obvious before: a herniation at the base of her skull (did you know you have cerebellar tonsils?), sort of above and behind the brain stem, effectively cutting off the flow of spinal fluid to her brain, that had been gradually increasing in size with every strenuous effort like lifting her children or grocery bags or exercise of any kind.
Diagnosis? Chiari I Malformation Thus ends the first leg of her journey. Finally an answer to their prayers. An answer.
Already almost one year ago John J. Oró, M.D. and his staff at The Chiari Care Center took her as an emergency case. After a quick consult and MRI, surgery was scheduled almost immediately. They had to travel from New Mexico to Colorado.
The surgery was a success. Joleen became known as a zipperhead (warning: somewhat graphic), named so for the long zipper-like scar running up from her spine to the back of her skull. All stapled together it looks just like a zipper. (That's Joleen on the left with her fellow Chiari patient/friend, Terri.)
Just when you'd think things couldn't get more complicated some two weeks post-surgery Joleen was in dire pain. Scared and uncertain they drove to the ER. On their way to the hospital they were in a horrible auto wreck; t-boned by a jerk with no license and no insurance. She suffered whiplash as a result and she only thought the pain before was unbearable.
She suffered for weeks and weeks. Three herniated discs in her neck at the site of the surgery. She couldn't walk, she couldn't sleep, she couldn't do anything. She wasn't healing. Pain management wasn't working. The pain increased and eventually she couldn't barely flex a muscle without almost blacking out. Imagine not being able to move your bowels because the pain feels like your head will literally explode at the neck.
And still she was strong and full of faith that her god wouldn't give her anything she cannot handle. I truly admire her for that. She has not wavered in her beliefs throughout this challenging time. If anything else it has made them deeper and more powerful.
Back to Colorado. They and Dr. Oró decided it would be worth it to do surgery for Tethered Spinal Cord Syndrome, another condition she's had since birth that is responsible for her scoliosis and is part and parcel one of the symptoms of the whole. Basically stated her spinal cord was tethered in the lumbar region and they were (are) hoping that by releasing it that will then release pressure on her spinal cord at her neck and allow the herniated discs to start healing and the pain will subside.
Around that time Joleen started a Caring Bridge journal starting on this page. It is password protected but you can IM me or email me for it. Check it out if you want to be inspired by her strength and faith.
And still it continues...
Home finally from the TSCS surgery and she started leaking spinal fluid from her incision. The doctor thought it might yet heal itself and stop leaking and asks them to give it a couple of days. It did not stop leaking. So, flat on her back in the back seat of her uncle-in-law's car, they took her back to Colorado again.
Surgery again at the TSCS site. After identifying the leak in two separate MRIs the doctor could not find it once inside. He spent several hours in there making sure everything was copacetic, applied a blood patch (I think?) and closed her up after piping the spinal fluid lost back into her stomach. Ew. (There is more to what all he did during surgery but I am blanking on that.)
Today she is still in Colorado. They are treating her as if she has a severe case of menengitis to make sure she didn't catch any virus or bacterial infection in her spinal cord. It involves, if I remember correctly, a tube to her arm muscle and a tube into the top of her heart where she receives multiple daily infusions of antibiotics. They are in a hotel now instead of ICU but they can't go home. They can however go on short jaunts in the car and just yesterday spent a day in Estes Park, CO (I am guessing by her description in her journal of bugling elk on a golf course - lol - they are protected in Estes Park.)
They are homesick but they are together. Her husband's job has been very understanding. Her kids are stepping up and taking great care of themselves and each other and their responsibilities at home with help from family. Her community has come forth and thanks to a fundraiser (For more information or to make donations you may contact Christina (Chris) Knox at (505)865-7864 (e-mail christina tk @comcast.net) or the church at (505)865-9334.) they can afford to keep living while they go through all of this. Her friends and family have been supportive and helpful offering food and prayer and love and more prayer, etc.
It has been long and trying and I'm sure it seems like it's lasting forever but this is merely a short chapter in her life. Things will get better and her life will be pain free soon. I know she will continue to look forward. There will always be the light of a new day ahead.
Tuesday, September 9, 2008
The story is written with a rich amount of description. "Very French" as my librarian would say. Enough so that I feel like the people are now a part of my reality. I liked that I could relate so well to being different, and being the stranger. I also liked how the flow was intense but mostly unwavering. Pleasing nonchalance from one voice and suitable irritation from the other.
I am reading the sequal now, The Girl with no Shadow. It is equally well written. Yet it is more suspenseful, and right from the beginning.
They made a movie of this story. I am watching it, too, for the first time. Very disappointing. Apart from the charactor names not a single detail went unmolested.
It was as if they took all the facts from the book and first threw half of them away. Then they took half again yet and turned them inside out. The two or three things they kept from the book seemed to be thrown into the production like exclamation points, totally missing the point of the original story and interrupting the flow of the monster they created.
I would give the movie an F- but for the eye candy of the two prinicipal characters and, at least one of them can act. I wish I had her hair...
Monday, September 8, 2008
You Have A Type A- Personality
You are one of the most balanced people around
Motivated and focused, you are good at getting what you want
You rule at success, but success doesn't rule you.
When it's playtime, you really know how to kick back
Whether it's hanging out with friends or doing something you love!
You live life to the fullest - incorporating the best of both worlds
Your Personality Profile
You are dependable, popular, and observant.
Deep and thoughtful, you are prone to moodiness.
In fact, your emotions tend to influence everything you do.
You are unique, creative, and expressive.
You don't mind waving your freak flag every once and a while.
And lucky for you, most people find your weird ways charming!
You Are Barney
You could have been an intellectual leader...
Instead, your whole life is an homage to beer
You will be remembered for: your beautiful singing voice and your burps
Your life philosophy: "There's nothing like beer to give you that inflated sense of self-esteem."